Monday, June 29, 2020 | 3:00–4:00 pm ET
Dr. Amy Brower, Co-Principal Investigator of the Newborn Screening Translational Screening Research Network (NBSTRN) and Alissa Huston, from the SCID Compass Program of Immune Deficiency Foundation (IDF) will talk about resources developed by the SCID Compass Program as well as an overview of updates to the Clinical Laboratory Standards Institute’s (CLSI) Guidelines for SCID newborn screening.
The SCID Compass is a program to guide parents of infants diagnosed with severe combined immunodeficiency (SCID), people living with SCID, and the medical community through the journey of patient with this rare life-threatening medical disorder. By building a community, we can find support each other.
Alissa Huston, MPH, SCID Compass, Immune Deficiency Foundation
Amy Brower, PhD, NBSTRN, American College of Medical Genetics and Genomics
This webinar is sponsored by the Association of Public Health’s (APHL) Newborn Screening Technical assistance and Evaluation Program (NewSTEPs), the SCID Compass Program, and the Newborn Screening Translation Research Network (NBSTRN).