7101 Wisconsin Ave, Suite 1101, Bethesda, MD 20814
301-718-9603
nbstrn@nbstrn.org

Our Tools

The NBSTRN provides tools to help researchers at each stage of newborn screening. Explore our current tools and contact us to find additional information and support.

The NBS Research Repository

Visit the NBS Research Repository to view a collection of State Profiles, Screening Implementation by State, and Expected Numbers of NBS Conditions by State based on known incidence of disease.

The Longitudinal Pediatric Data Resource

Visit the LPDR to capture and view phenotypic and genotypic data about individuals with NBS disorders.

ELSI Advantage

The NBSTRN Bioethics and Legal Workgroup has a variety of resources for newborn screening researchers. Contact the workgroup for expert consultation about study design, IRB protocols, and return of results.