NBSTRN is ready to help you fulfill your research.
View information about newborn screening disorders, collect and analyze phenotypic and genotypic data, and collaborate with other researchers.
We’re excited about growing our network.
Contact us to join the network, discover partnership opportunities, support our work, or ask questions about newborn screening.
Family & Parents Network
Newborn screening research depends on the involvement of parents, patients, and families.
Join us to follow your family’s health over time. Store links to information on your family’s condition, watch a tutorial on how to enter health information or understand more about newborn screening research.